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A Care-Giver's Week:  Wednesday

By Meri Ulrich
July 22, 2007

[Author's Note:  The following is an excerpt from a book that I am working on. Just like the life that my husband and I are living ...this is a work in progress.]

 
 
Wednesday begins at the crack of dawn for us and I am not at my best. We have to wake up at 5:00 am in order to be ready for the Town Car Service to pick us up to travel to Banner Samaritan Hospital in downtown Phoenix. My husband will be undergoing his first PET Scan and MRI in accordance with the new Study that he has entered  into and we can't be late.
 
I received explicit instructions from the Nurse Administrator who is in charge of the PET Department's Study Program and she made it very clear to me that the appointment time was set in stone.
 
The procedure takes several hours and must begin on time which opens up a whole new world of stress for me.
 
I get my husband up and explain (several times) where we are going and why we are going there. He reluctantly gets ready and takes his pills and eats a small bowl of cereal so that there are six full hours between this ritual and the actual test.
 
I am racing around like a chicken with it's head cut off to try and get ready and I am shocked that this is accomplished with relative ease at such an ungodly hour. . I think that I broke records for speed because we managed to accomplish everything in under an hour. Of course, I now have a splitting headache and forgot to eat so I am operating on a coffee rush with no food to cushion the blow between my brain and my growling stomach.
 
You've heard the expression "Hurry up and wait"?, well that's what we do for almost half an hour. No Town Car.....we will be late....panic. I was given the number for the transportation company and I frantically call them to tell them that the car hasn't arrived...yada, yada, yada. They tell me to look out my front door because the car is pulling up as we speak. They are right, and off we go into the unknown and the highly anticipated.
 
The driver is a charming fellow who makes conversation all the way to the next stop....next stop? We are picking up a lady who is also going to the hospital, and now I am positive that we will be late for the testing. The driver assures me that he does this sort of thing every single day and that we will make it on time. I have no choice but to put my faith in him.
 
We arrive on time and once we've made it through the maze of hospital corridors to the Nuclear Medicine Department, we are met by Alicia Domb, RN, who is in charge of the Study and the procedures. She is very kind and gentle and explains in great detail every single form that I am required to sign as his care-giver. Most of the papers are explanations of what the procedure is but a few of them tell me that since this is a "Blind Study"; no one will know my husband's name or any personal details and  the information will not be shared with anyone who isn't directly involved in the Study itself.  Fortunately, having been a Nurse, I am able to understand most of what is said.
 
It takes over an hour to complete the paperwork and then my husband is taken into a small side room where IV's are placed in both of his arms. This is so they can administer the dye for the PET Scan. As usual, he is being his usual comical self and everyone loves him. I am just tired and anxious to get the whole thing over with.
 
Once the IV's are in place, he is taken into a large, dark, chilly room where there is a table under a tunnel-like machine. They give him a blanket and pillows and make him as comfortable as possible. They, consist of Nurse Domb and a Tech who actually performs the test. It's a good thing that he isn't claustrophobic because they slide him under the tunnel-like contraption and his head disappears from sight. This test will take two hours and I am told that I can check up on him anytime that I want too. I stay for a while to see that he's okay and then make my way to the small waiting room to attempt to read the book that I brought with me.
 
I am not a person who finds it easy to sit still for long periods of time so I wander between the PET Scan room, the outside walkways (where I smoke) and the waiting room where I try to read while a small television set continually plays some inane cooking show. I try to change the channels but the boring cooking channel is the only one I can get. They obviously don't want the patients (or the people who come with them) overly-stimulated. No "Law and Order" for me today; just lots of healthy foods being prepared by some woman who looks like a modern version of Betty Crocker.
 
I admire my husband for his patience because every time I venture into the PET Scan room he is lying there quietly, never making a move or complaining of any discomfort.
 
Finally, the test is completed and Nurse Domb walks us to the hospital cafeteria with tickets to purchase our lunch. This particular cafeteria has a soup and salad bar, a fast food area, a daily menu area, and a sandwich area. They even have an espresso and coffee bar so we had a large choice of food to select from. Sadly, no matter the variety and the fact that the food was free...it tasted like hospital food and I stuck with a turkey sandwich and a container of chocolate milk. My husband got something else but it was unrecognizable so I didn't comment.
 
We have one hour to eat until we must to return to the Nuclear Medicine Pod to meet with Alicia once again. We arrive on time and are escorted to another building on the hospital grounds where MRI's are performed.
 
The waiting area was just as small as the previous one but it seemed newer and more modern. The choice of reading material was just as stale and boring. The MRI test only takes about half an hour and I have barely  gotten into the latest chapter of the book I have brought with me before my husband returns and we are walked to the front of the building where we are informed that our Town Car will soon pick us up for the return ride home.
 
After an hour with no Town Car in sight I return to the reception area and complain. Someone there calls Nurse Domb and soon enough the car arrives. The return trip is less stressful than the morning's journey because we aren't under pressure to be on time.
 
The long testing day comes to an end at about 5:00 pm and I am grateful to be home.
 
Tomorrow, will be fairly simple compared to the previous couple of days as we only have to return to the Research Center where a battery of doctor's and a psychologist will continue testing my husband to determine how far his disease has progressed. I will also be grilled because I am his care-giver and knowledge of what I should expect as his disease progresses and the Study continues, are essential to his well-being (and mine too).
 
Thursday beckons and I now believe that I can handle what ever is to come.....
 
Suddenly, the old expression, "Denial ain't just a River in Egypt" flashes through my brain. On a day where the temperatures hit 110 degrees, I get the chills.

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About the author: Meri has a Medical/Legal background and is a former forensic researcher specializing in psychological profiling.

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Email: writers2@cox.net


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